University of Nottingham Stroke Research Partnership Group

aasgroup The Nottingham Stroke Research Partnership Group (@astroke) is a group of stroke survivors and carers who work with stroke researchers from the University of Nottingham. The Group meets every two months to review stroke research proposals.

Where appropriate, lay members may also serve on research study steering groups or participate in research studies themselves. The Group’s aim is to ensure stroke research conducted locally involves stroke patients and carers and is informed by their needs and wishes.

Information for Researchers

If you have a stroke research proposal you would like to submit for review by the Nottingham Stroke Research Partnership Group, please contact Helen Taylor (This email address is being protected from spambots. You need JavaScript enabled to view it.) to express an interest. You will be allocated a presentation slot at a forthcoming meeting.

Please provide:

• A one page A4 lay summary of the project to This email address is being protected from spambots. You need JavaScript enabled to view it. two weeks prior to the meeting.

Your summary should include:Title of study

Description / background details of the study

Three questions you wish the lay members to consider

Please prepare:

• A 5-10 minute presentation of your project to bring to the meeting

You will be asked questions on the day. There is usually a 15 minute Q&A session allowing input from lay members (stroke survivors and carers).

You will receive feedback after the meeting.

You will be expected to provide a status update, including whether funded or not, to the Group six months after presenting your proposal.

Link to the Nottingham Stroke Research Partnership Group UoN page: Click here

Information for Stroke Survivors

The Group is currently composed of 15 stroke survivors and carers who meet every two months. We also have 17 virtual group members who review research proposals and provide comments electronically.

If you are interested in becoming a member of the Group, please do get in touch with Helen Taylor (0)115 82 30246 or This email address is being protected from spambots. You need JavaScript enabled to view it.

Meetings 2018

Monday 22nd January
Monday 19th March
Monday 21st May
Monday 23rd July
Monday 17th September
Monday 19th November

Meetings 2017

Monday 16th January
Monday 20th March
Monday 8th May
Monday 17th July
Monday 18th September
Monday 20th November

Venue: Lakeside Arts (click for Map)

Further dates to be confirmed.

For more information contact:

Helen Taylor, Administration Coordinator, Stroke Research Partnership Group (atastroke)
Email: This email address is being protected from spambots. You need JavaScript enabled to view it.
Tel: +44 (0)115 82 30246

Post: Helen Taylor, Division of Rehabilitation and Ageing, Room B114, B Floor,
Medical School, University of Nottingham, Queens Medical Centre,
Nottingham, NG7 2UH

Lay Conference Summary

The Nottingham Stroke Research Partnership Group (atastroke) held a Stroke Lay Conference on 18th July 2016. This was attended by over 90 delegates most of which were stroke survivors, carers and families affected by stroke.

The purpose of the Stroke Lay Conference was to give stroke survivors and carers a chance to:

· Find out about stroke research projects at the University of Nottingham

· Ask questions
· Hear stroke survivors talk about their experience
· Meet stroke researchers
· Network with others affected by stroke
· Get involved in local research
· Hear about the partnership group

Speakers included Dr Niki Sprigg who provided an overview of stroke research. Stroke survivors, Christine Knott and Fred Higton, outlined their personal experiences of taking part in stroke research. Research studies presentations were given by Jason Appleton exploring medicated skin patch treatment to lower blood pressure in stroke patients and Louise Hawkins presenting her research into fatigue after stroke.

Meet the researcher sessions covered topics on Transient Ischaemic Attack (TIA) and minor stroke management, impact of stroke on families, emergency treatments to help recovery after stroke: drugs and devices, and stroke rehabilitation in hospital. Expositions included electrical stimulation for arm weakness, improving sight after stroke, Stroke Association services, stroke care pathway, brain in hand, driving skills after stroke, Different Strokes, Bassetlaw stroke information service, and the Ossie Newell Foundation www.ossienewellfoundation.com

Presentations are available on the website: www.atastroke.com

http://www.atastroke.com/events/nottingham-stroke-research-partnership-group-lay-conference-2016